Hello!

Thursday 2nd March 2017

"We live in bodies that are fearfully and wonderfully made, yet they are not immune to illness and pain. We have hearts that are capable of experiencing great love, but sometimes they get broken." Adam Hamilton

Hello!

I'm really happy you've landed here.

I've never blogged before and I'm feeling nervous about opening up and sharing my private thoughts with you; revealing my deep hidden fragility and vulnerability.  I always like to feel strong, in control, able to help others but I've felt a million miles from home over the last year.

In 2016, my world shifted from having a barely noticeable lump on my leg, to a raging high-grade sarcoma that interrupted my life beyond reason. 

I felt that I had lost all control. My family and friends wrapped comfort and love around me and they too felt a bomb had exploded.

I'd never come across the word, sarcoma, when I was diagnosed. Only about 1% of all cancers turn out to be this very cheeky active type (medically referred to as rare and aggressive)  So chances are there are millions of others who don't know about sarcoma.

I'm no expert on sarcoma but I've lived with it for over a year now so let's say I'm really familiar with it. 

Sarcoma, like any type of cancer, demands so much attention, creates heightened emotions, and almost drove me to the edge of insanity. It causes problems.  It presses the pause button on careers, education, retirement, holidays.  It fires a rocket through social lives, personal relationships. It's hungry.  It's greedy. It makes time and money evaporate. 

I'm so focused on surviving to give me the opportunity to inspire and help others. I'd love for someone to look at me and say because of you I kept on going. 

To be able to inspire I really need your help so that I can access ground-breaking immunotherapy treatment overseas, that's not yet available here. We've explored lots of avenues here in the UK and to date the research has not led us to the answer for sarcoma.  

If you can help me to spread the word about sarcoma that would be amazing and I'd be so grateful to you for any help at all.  

If you want to share your thoughts and experiences, I'd love to hear from you.

Sending you lots of love, light, hugs and wishes for great health.

Jules X

P.S. A great resource for those of you affected by sarcoma or simply interested to know more, is Sarcoma UK